Advocacy in Action

Understanding of skeletal dysplasias, their complications and how they can be managed has hugely improved in the last 20 years.  
As understanding has increased in the clinical setting, pharmaceutical research has also identified potential therapies. 

At F.E.S.T., we aim to support those affected by growth-restrictive skeletal dysplasia with access to the latest research and services that can improve quality of life by reducing health complications and pain.